Data Visualization for Teens with Chronic Pain
DFP Student Team: Unma Desai (MSc, Computer Science, UBC); Devarsh Bhonde (PhD, Civil Engineering, UBC); Haomiao Zhang (MSc, Mechanical Engineering, UBC); Katra Farah (MEd, Curriculum and Pedagogy, UBC); Rubia Guerra (MSc, Computer Science, UBC)
Chronic pain is a common pediatric condition for youth, and current literature indicates that the mental health of patients can impact the chronic pain experience. In this context, a group of researchers at the BCCHR developed an ecological momentary assessment (EMA) survey, containing questions in key areas to record contextual information around the mental and physical wellbeing of 12-18 years old chronic pain patients. However, there is no existing tool for chronic pain patients to comprehend this survey response easily. In this project, we designed data visualizations based on the personal health data generated through the EMA, which aim to help improve mental health and general functioning in these patients. The team conducted several rounds of user interviews with various stakeholders, based on which we developed a set of visualizations using pilot data. We also prototyped a comprehensive mobile application for patients to engage with the visualizations, and conducted a usability study with proxy users to evaluate our prototypes. Through this project, we went through an iterative design and testing process to design data visualization prototypes that could act as interventions for young chronic pain patients to track their progress of pain, emotion, sleep and peer interaction. Further based on the feedback and literature, we formulated design guidelines for health data visualization for youth with chronic pain.